Useful links

A selection of useful links to websites of associations and research organisations providing the most updated information and advice about cutaneous lymphomas.


CLF – Cutaneous lymphoma foundation

CLF’s vision is to build a life free of cutaneous lymphoma, eliminating the burden of the disease by promoting awareness, providing education, advancing patient care and fostering research.



Orphanet was established in France. Its focus is on rare diseases and its mission is to improve the diagnosis, care and treatment of this patients. Over the past 20 years, Orphanet has become the reference source of information on rare diseases.


EMA – European Medicines Agency

EMA fosters scientific excellence in the evaluation and supervision of medicines, for the benefit of public and animal health in the European Union (EU).


EURORDIS - Rare Diseases Europe

EURORDIS - Rare Diseases Europe is a unique, non-profit alliance of 961 rare disease patient organisations from several countries that work together to improve the lives of people living with a rare disease in Europe. EURORDIS strengthens the patient voice and shapes research, policies and patient services.

Associations and Foundations




ISCL - International Society of Cutaneous Lymphomas

ISCL is a non-profit, global organisation which comprises physicians, scientists, and allied healthcare professionals involved in cutaneous lymphomas.

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